So...We're kind of in the same spot since my last blog post but I feel like I should update on somethings, since I'm having a hard time and its coming through in my blog posts...
The last weeks have been kind of scary. 1 week ago we rushed Jaxson into the emergency room - He made a wierd noise in his sleep, he was having trouble breathing and his heart rate was 200bpm. He was twitching (not tremoring) and his temperature had risen to 104. By the time we got to the hospital, all but his temp were normal and they were wondering if he had a different kind of seizure since he was not very aware when I took his temp at home and took his vitals...(I do get to use my vet tech skills as a mom!)
Jokes aside, Jaxson has been falling flat on his face and he has not tried to catch himself for the last 5 days. Although some days he has trouble and he falls, he usually can always catch himself -This is called your protective response reflex, but this is so different. One day he was standing in the middle of the floor with his teddy bear and then he just fell head first into the floor, like something had pushed him. He was aware, so I don't know if this was seizure like activity but it seems convincing considering the previous episode. He has proceeded to toppling off the couch onto his face, Bruises and 2 bloody noses later...It just hasn't stopped.... Temperatures are slightly higher than normal, around the high 101's.
So luckily -We had an appointment with our Pedi this morning .We recently (4 days ago) started a new anti seizure medication for his falling and the spell that happened on Sunday in hopes that we can get Jaxson on a more tolerated medicine and dose and see if this helps...so...Could this be a result of the seizures? its possible. However, Our doctor feels like this is most likely "whatever is going on with jaxson" neurologically is progressing. The part of the brain which controls the cranial nerve that would effect just the top lip is such a tiny small spot, so its unlikely the new medication would be cause for this - however we do have a phone call into Boston right now.... We had no closure today...no answers but 1,000 more questions.. as always! They have been discussing another MRI, I really hope we don't have to do that again.
But...it looks like things are progressing, and its just scary - How far will this progress? What else will be effected? Will the facial paralysis stop here? go away?....So I'm a little worried...Okay, A LOT worried!
(On a back note we got a referral for Genetics and Rheumatology ASAP)