Thursday, September 19, 2013

Blood Work, Blood Work and More Bloodwork

We are off early to the lab this morning before Jax gets his trileptal. Dr's in Boston are very concerned of the new development and want to check the levels in his blood before dong anything further. Checking many different things along with Liver functions. I don't know what this means as far as his facial droop...I'm just sick of blood draws...We have them all the time and I know its only going to get worse when we hit genetics. He's doing great though, no better but no worse....He lights up my world with his smile, I couldn't imagine loving anything more.

Josh isn't with us today and I'm starting to feel the weight of this....