Been a while since my last update, a lot of things have happened...
We have a rheumatology appointment set for October 1st, followed by Genetics October 17th. So very happy to get these specialists on our team... I think genetics is the big step in the right direction for us.
On an amazing note, I do believe Jaxson's seizure medications are helping. I am no longer seeing starring spells, though I did see one yesterday but it was so short...I think it was more tuning out honestly...and the best thing is - he's starting to be more vocal!! He's making a lot of noses, different syllables.... Though we're not hearing anything "consistent" yet other than "sit", our speech therapist cried this morning and hugged me and said, " Im so excited, I just hope these noises turn into words and I really hope they stay... My fingers are crossed" and mine are too...Regression has been one of his biggest problems. Recently - He has regressed his skills with how he holds his crayons and "colors" as per OT, and he's regressed in some signs this week - However, that could just be because he's being more vocal than before!
He's doing really well and I'm over the moon with all these accomplishments. I have no doubt in my mind that these medications are helping him...and I'm just so happy.